Monthly Archives: August 2018

A Long Road

Jonathan here – I should have written this weeks ago. But it has been a very challenging summer for my amazing wife. She is currently improving. But a quick recap is:

• After a trip to Wyoming and Colorado in June, she developed very severe graft vs. host disease symptoms of her eyes. It was very painful, and made daily tasks impossible.
• The treatment until the GVHD subsided was an intense drops / gel / lense refresh regimen throughout the day.
• A very aggressive eye infection then formed. That brought us to the ER a few weekends ago. We knew it was serious because of the quick attention she received. At one point around 6 people were in a small room looking at here eyes.
• One eye was mostly clear but infected. Her right eye had a ulcer that formed very quickly.
• This meant that we had to throw away her scleral lenses. These have been a life-saver, and I won’t mention the price.
• Over the past few weeks, she has been recovering and her eyes have slowly improved. She even got 1 scleral lense for the now-clear eye.

April’s Mom has been amazing and has stayed with us to help. April also received some great lung improvement news today, with an FEV score of 25%. That’s up from 21.

We still need prayer of course. But we do feel God’s grace, and remain thankful for many reasons.